2017 EVENTS

OUR YOUTH AMBASSADORS HAVE BEEN REALLY BUSY DURING THE MONTH OF FEBRUARY!

Thank you to Chris Alessandri, Liam Garbus and Ben Rabinowitz for presenting to over 1100 students and staff at Berner Middle School!

And thank you to Mary Gregorian who presented, with Dr. Budman, to first year Psychiatry Fellows at Zucker Hillside Hospital at Northwell Health.

Thank you to Shoshana Rabinowitz who presented to the TAA Leadership Team and TAA Board of Directors at their February Board meeting.

All of these outstanding Youth Ambassadors did extraordinary presentations and were incredibly well received!

LONG ISLAND TOURETTE ASSOCIATION

GOES TO CAPITOL HILL FOR

NATIONAL TOURETTE ADVOCACY DAY

1st row: YA Founder-Jen Zwilling, Jane Zwilling, Psy.D, Kate Callan,  

2nd row: Keri Reilly, YA Chris Alessandri, Denise Alessandri, YA Jillian Bliss,YA Gianna DiLeo, Elise DiLeo

3rd row: YA Patrick Reilly, Matt Alessandri, Kim Sommer, YA Eric Sommer, Rachel Brenner Bliss, Rachel Gibbons and YA Ben Rabinowitz

Not pictured: YA Rebecca Caron and Susan Caron

Long Island members joined with other Youth Ambassador teams from around the country and staff of the Tourette Association of America to create a "sea of teal"  advocating on Capitol Hill on Tuesday, March 7th, National Tourette Advocacy Day.

Our LI Youth Ambassadors (and parents) did an outstanding job telling their stories on the Hill and obtaining commitments for support from the offices of Senators Schumer and GillIibrand as well as from the offices of Representatives Pete King, Tom Suozzi, Kathleen Rice and Lee Zeldin.

JEN ZWILLING TRAINED A NEW CLASS OF YOUTH AMBASSADORS

Our very own Jen Zwilling trained 37 new YAs from around the country who then joined National Advocacy Day. Included in the 37 newly trained YAs were 5 new Long Island YAs!

CONGRATULATIONS AND WELCOME TO OUR NEWLY TRAINED 2017 LONG ISLAND YOUTH AMBASSADORS!

Pictured from left to right:  2017 YAs Rebecca Caron, Gianna DiLeo, Jillian Bliss, Eric Sommer and Patrick Reilly prepare to advocate on the Hill!

2017 LI YOUTH AMBASSADORS WERE JOINED BY ALUMNI YOUTH AMBASSADORS

Pictured from left to right: Alumni YA Chris Alessandri, Alumni YA Ben Rabinowitz, 

2017 YAs Rebecca Caron, Gianna DiLeo, Jillian Bliss, Eric Sommer and Patrick Reilly

2017 LI-TA WORKING WITH OTHERS TO ADVOCATE ON THE HILL

MARCH SOCIAL RECAP

A great time was had by all at Bowlmor!
We had over 40 kids and adults attend our bowling social on March 26th.  There was pizza, soda, cupcakes, good conversation, laughing and lots and lots of bowling!

MANAGING ANXIETY & OCD SUPPORT GROUP

Friday, April 7th, 2017

7:30 - 9:00PM

DeMatteis Center/101 Northern Blvd./Greenvale, NY 11548  
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Dr. Sony Khemlani-Patel spoke about OCD and anxiety to a packed room and a rapt audience. 

Many thanks to our wonderful speaker and to everyone in attendance!

 

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Speaker: Sony Khemlani-Patel, Ph.D.
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Sony Khemlani-Patel, Ph.D. is a licensed clinical psychologist specializing in the treatment and research of obsessive compulsive related, anxiety, and mood disorders at the Bio Behavioral Institute in Great Neck, NY. In addition to providing direct clinical care, 
Dr. Khemlani also supervises psychology interns and participates in various research projects. She has presented and published on body dysmorphic disorder and also has publications on obsessive compulsive disorder and self injurious behavior.


She has co-authored two books, "When Your Child Is Cutting" and "Overcoming Body Dysmorphic Disorder." 


Dr. Khemlani is a Board Member and Secretary of OCD New York, 
which is the NY Affiliate of the non-profit international OCD Foundation. 

OUR YOUTH AMBASSADORS (YAS) KICK OFF TOURETTE AWARENESS MONTH!

YAs  Becca Caron (2017), Eric Sommer (2017), Gianna DiLeo(2017), Jillian Bliss (2017) and Patrick Reilly (2017) from Long Island, NY did an outstanding job on their first two presentations. In preparation for and to kick off kick Awareness month, Long Island YAs all met and practiced the YA presentation. Experienced YAs  Ben Rabinowitz (2014), Chris Alessandri (2015) Gabe Viret-Quintero (2016), Liam Garbus (2016), Mary Gregorian (2016), Olivia Viret-Quintero (2016), Sam Gil (2015), Sammy Scileppi (2015) and Shoshona Rabinowitz (2010) were present to support and help the 2017 YAs.

The 2017 YAs then presented to the experienced YAs and parents. Becca, Eric, Gianna, Jillian and Patrick all did an excellent first presentation.

...then...Becca, Eric, Gianna, Jillian and Patrick presented to 39 attendees of the LI TA Parent/Adult Support Group.

The presentation was  very well received and parents who were not familiar with the program stated they are ready to ask their schools to allow YA presentations!  

YOUTH AMBASSADOR PRESENTATION IN PATCHOGUE

YAs Rebecca Caron (2017), Gianna DiLeo (2017) and alumni YA Tyler Bloch (2012 ) home from his first year of college, busy for Tourette Awareness month with a presentation at Saxton Middle School in Patchogue NY.

The presentation was to 36 members of the National Junior Honor Society, Buddies Club and GO Club. There were also two staff members in attendance including the Principal.

The presentation was very well received and the students asked great questions.

2017 TOURETTE NATIONAL AWARENESS WALK/5K

A beautiful day to raise Tourette awareness at the Tourette National Awareness Walk/5k!

Thank you Team Long Island!

TOURETTE AWARENESS DAY AT SCHOOL!

This is Lia, a very special little girl, who dressed in Teal from head to toe to spread Tourette awareness and raise funds at her School, St. Margaret's Academy. Thank you Lia for raising $604.00 for the Long Island Tourette Association of America!  

Your support will go a long way in helping all who live with Tourette every day. 

And heartfelt thank you to St. Margaret's Academy for the support!

CONGRATULATIONS TO DR. CATHY BUDMAN, HONOREE OF THE 2017 TAKE IN COMEDY

Monte Redman presenting the award to Dr. Budman

On June 5th, 2017, Dr Cathy Budman was honored for her unswerving dedication to the Tourette Community at the NYC Chapter of TAA fundraiser, Take In Comedy.

The event was held at the Gotham Comedy Club with a record turnout showing love and support for Dr. Budman.

Please visit NYC Chapter Take in Comedy page for photos and special thank yous!

CONGRATULATIONS TO THE 21 NEWEST 2017 CALIFORNIA TRAINED YOUTH AMBASSADORS!

Our very own Jen Zwilling trained an additional 21 new  2017 Youth Ambassadors in our first ever CDC Funded YA training in California! Included in the 21, was our new Long Island YA, Blaise Urato.

CONGRATULATIONS TO OUR NEWEST 2017 CALIFORNIA TRAINED YOUTH AMBASSADOR,

BLAISE URATO

THANK YOU FOR COMING TO OUR ANNUAL

FAMILY FUN DAY!

Pictures from the 2017 Family Fun Day

Thank you to everyone who came out to support 2017 Family Fun Day!

And a special, heartfelt thanks to those of you who volunteered long hours of your time before, during and after to help make our annual awareness/fundraiser event such a great success!

We couldn’t have done it without you! 

We hope you had as much fun as we did!!

See you at our first Support Group Meeting of the 2017-2018 school year on 

September 8th at 7:30pm

 

Have a wonderful summer and remember we are only an email away! 

FUNDRAISING CONCERT AT MEMORIES

HEARTFELT THANKS TO: 

THE ALESSANDRI FAMILY-DENISE, JOHN, MATT AND CHRIS 

AND TO BEYOND CONTROL AND THEIR AMAZING MUSIC TEACHER AL PENNACHIO

Beyond Control,  directed by music teacher Al Pennachio, put on an exceptional performance at 

Memories Bar and Grill in East Williston to raise awareness and funds for LI TA!

The Alessandri family organized this wonderful event which brought together over 100 individuals who came out to enjoy the outstanding performance of these incredibly talented teens while enjoying great food and raffle prizes! 

 

Thank you to Beyond Control Band Members:

You were all sensational!!!

 

Walter Szczech 

Justin Harvey

Danny Ramirez 

Marena Ramirez 

Angelo Nardo 

Leo Nardo

Kaitlyn Dugal

Kristina Rossi

Wes Morrisey 

Alexis Diaz 

Sofia Leiter 

Chris Alessandri

TOURETTE ASSOCIATION OF AMERICA, NY STATE CHAPTERS AND REPRESENTATIVES FROM NY STATE CENTERS OF EXCELLENCE VISIT NYSED OFFICES IN ALBANY

Front Row, Left to Right: Sue Conners, President - TAA of Greater NY State, Lisa Hazen, President, TAA of NYC

Second Row, Left to Right: Amy Miranda, Social Worker, Weil Cornell TS Center of Excellence in NYC, Dawn VanKleeck, 1st Vice-Chair, TAA of Greater NY State, Melanie Stein, Parent, TAA of Greater NY State, Sharon Hammer, Co-Chair of TAA Hudson Valley Chapter, Dr. Jane Zwilling, Co-Chair, TAA of Long Island, Co-Director, Long Island Center for Tourette and Associated Disorders-TAA Center of Excellence, Co-Founder of the Youth Ambassador Program, Joanne LaCrosse, Coordinator of Policy and Professional Development, NYSED Office of Special Education, Gary Wainwright, Chair, TAA of Rochester and the Finger Lakes, Loretta Longo, Board Member, TAA of Greater NY State and Albany Support Group Leader for the Chapter

Last Row: Christopher Suriano, NY State Assistant Commissioner of Special Education

Representatives from all 5 TAA Chapters in New York State along with representatives from NY State Centers of Excellence met in Albany on November 1st with Christopher Suriano, NY State Assistant Commissioner of Special Education and Joanne LaCrosse, Coordinator of Policy and Professional Development. NYSED Office of Special Education. The purpose of the meeting was to seek the collaboration of the State Education Department in requiring training for all schools in NYS on Tourette Syndrome. 

 

It was a very productive and well-received meeting with Mr. Suriano and Ms. LaCrosse. The survey/petition that was signed by so many NYS parents, students and professionals along with the comments telling personal stories was presented and played a large role in helping us advocate for our goal of education for all teachers in all NYS schools.

This is the beginning of what we are hoping will be a long and very successful partnership between NYSED and the TAA Chapters and Centers of Excellence across NY state. 

 

Thank you to everyone who signed the petition and shared stories. 

And thank you to all the Chapter and Centers of Excellence leaders for their willingness to travel to Albany for what may be a meeting that changes the lives of children with TS all over NY State. 

We will be keeping you posted on our continuing work with NYSED.

YOUTH AMBASSADOR

PRESENTATION IN FRANKLIN SQUARE 

YAs Patrick Reilly, Katie Reilly, Eric Sommer, Chris Alessandri, Ben Rabinowitz and Becca Caron

Thank you to our Youth Ambassadors who did an outstanding job presenting to 

122 students and 16 staff members in Franklin Square School District!

LITA AT THE SACHEM SPECIAL NEEDS FAIR

YAs Steven, Chris and Gianna spread awareness and educated attendees who visited the LI TA table

Youth Ambassadors Steven Argenzio, Chris Alessandri and Gianna DiLeo 

Saturday, November 4th in partnership with Sachem SEPTA, the Sachem Library provided an opportunity for people to connect in person with over 30 local organizations that provide services for special needs children, teens, and adults.

YOUTH AMBASSADORS IN SMITHTOWN

Gianna DiLeo and Becca Caron presenting at Smithtown High School East

Mary Gregorian presenting at Mt. Pleasant Elementary School

Chris Alessandri and Gianna DiLeo presenting at Smithtown High School East

Students at Mt Pleasant Elementary School participating in a YA presentation

Mary Gregorian presenting to more students at Mt Pleasant Elementary School

YOUTH AMBASSADORS IN CENTER MORICHES

YAs Jillian Bliss, Gianna DiLeo, Becca Caron and Ben Rabinowitz presenting at Clayton Huey Elementary School in Center Moriches 

YOUTH AMBASSADORS IN MEDFORD

YAs Gianna DiLeo, Chris Alessandri and Becca Caron presenting at Eagle Elementary School in Medford

YAs Mary Gregorian, Gianna DiLeo, and Becca Caron presenting in Tremont Elementary School in Medford

YOUTH AMBASSADORS AT FUSION ACADEMY

YAs Chris Alessandri and Eric Sommer presenting at 

Fusion Academy in Woodbury. 

LONDON JEWELERS' CHAMPIONS FOR CHARITIES KICK-OFF

Heartfelt thank you to London Jewelers 

for once again hosting our 

Champion for Charities Kick-off.

Thank you to everyone who came out to support us and to everyone who participated in the 4 day shopping event!

CONGRATULATIONS AND THANK YOU TO OUR 2017 YOUTH SERVICE AWARD RECIPIENTS

OUTSTANDING YOUTH SERVICE AWARD for dedication as

LI TA Youth Ambassador and BUDDY

Chris Alessandri

Ben Rabinowitz

Shoshana Rabinowitz

Eric Sommer 

Olivia Viruet-Quintero

 

OUTSTANDING YOUTH SERVICE AWARD  for dedication as

LI TA Youth Ambassador 

Steven Argenzio

Rebecca Caron

Gianna DiLeo

Mary Gregorian

 

YOUTH SERVICE AWARD for dedication as a LI TA Youth Ambassador

Jillian Bliss

Samuel Gil

Katie Reilly

Patrick Reilly

Gabe Viruet-Quintero

 

YOUTH SERVICE AWARD for dedication as a LI TA  Buddy 

Zach Berlin

Ben Ferbin

Julia Friedman

Lianna Friedman

Jared Katzelnick

Sara Popofsky

Angelina Remmek

Sophia Remmek

 

Congratulations and thank you to our newest Youth Ambassador

Blaise Urato 

 

Congratulations to and thank you to our newest Buddies

Victoria Argenzio

Emma Beattie

Sarah Beattie

Kasim Waqar 

YOUTH SERVICE AWARD for dedication to LI TA  

Sarah Scileppi

OUTSTANDING COMMUNITY SERVICE AWARD PRESENTED TO: LISA FILIPPI, PH.D.

The Outstanding Community Award was presented this year to Lisa Filippi, Ph. D., with heartfelt appreciation for dedication, commitment and service to our community and to all those touched by Tourette Syndrome.

Lisa has held leadership positions as vice-chair and co-chair of our chapter for many years. She has dedicated countless hours, tireless effort, and invaluable expertise to the Tourette community. She has touched the lives of many, and our community owes her a great debt of gratitude. From the bottom of all our hearts, thank you!

2017 HOLIDAY PARTY

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Long Island Tourette Association celebrated the end of another very successful year of support, education and advocacy. On December 8th we held our annual general meeting followed by our Holiday Party. By all accounts, the fun and games were thoroughly enjoyed by all. There was a great turnout! We thank everyone who attended and shared in all the festivities and refreshments.

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Visit the Long Island Center for Tourette and Associated Disorders:
https://www.litourettecenter.org/
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info@longislandtourette.org

P.O. Box 615 Jericho, NY 11753

516-590-7551

DISCLAIMER: THE INFORMATION CONTAINED IN LI TOURETTE ASSOCIATION'S WEB SITE IS FOR INFORMATIONAL AND EDUCATIONAL PURPOSES ONLY. WHILE IT IS BASED ON PROFESSIONAL ADVICE, PUBLISHED EXPERIENCE AND EXPERT OPINION, IT DOES NOT REPRESENT A THERAPEUTIC RECOMMENDATION OR PRESCRIPTION. WE URGE YOU TO CONSULT YOUR OWN MEDICAL PROVIDER. FOR  THE FULL DISCLAIMER PLEASE PRESS HERE ©2016 BY TOURETTE ASSOCIATION OF AMERICA, LONG ISLAND CHAPTER. PROUDLY CREATED WITH WIX.COM