Here is a sample of a memo you can use to send to your child's teacher(s) on the first day of school.  It's imperative to be proactive and not reactive.  

     The more information you give to not only the classroom teachers, but all staff interacting with your child such as the school nurse, psychologist, social, worker, guidance counselor, librarians, music, art and physical education teachers, gives all involved a head start and important information about the complexities of your child. 

     Feel free to add information about the Youth Ambassador program and that you would be reaching out in the future to set up a presentation.

     All schools have a Superintendent's Conference Day  scheduled at the end of August or possibly early September.  This is a perfect opportunity for an in-house presentation to faculty and staff by a professional from our Education Committee. Reach out to your school's Superintendent and request the possibility of carving out time in their agenda. If this can't work, request that an in-service be presented at a faculty meeting.

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WEBINAR SERIES FOR ADULTS WITH TS

Tourette Syndrome is a lifelong condition impacting all ages. While Tourette Syndrome is a childhood onset disorder, 66% of adults experience tics and co-occurring conditions that persist throughout adulthood. The TAA and Adult Task Force, comprised of adults with TS and leading physicians across the nation, have identified relevant topics of which support for the community is needed.

https://tourette.org/resources/webinar-series-for-adults-with-tourette/

CDC PATIENT TOOLKITS 

These toolkits are full of information and resources to help anyone dealing with the complexities of Tourette Syndrome.  The toolkits can be downloaded  through this link:

https://www.tourette.org/media/Full-Family-Toolkit-rev.pdf.

NEED HELP DEALING WITH SCHOOL ISSUES AND YOUR CHILD?

Kathy Giordano (TAA Education Specialist) has supplied us with two education links, that addresses some common challenges when dealing with schools. 

 

If Parent Disagrees with School Evaluation

Independent Educational Evaluations (IEEs): What You Need to Know

The Teacher is Not Following IEP: What Can I Do    

The Teacher Isn’t Following My Child’s IEP. What Can I Do? 

THE COLLEGE BOARD AGREES TO PROVIDE THE SAME ACCOMMODATIONS THAT STUDENTS ARE RECEIVING IN SCHOOL

The College Board has finally agreed to provide the same accommodations that students are receiving in school.

Click here for article

TAA will continue to monitor this. If you continue to have difficulties receiving accommodations, please contact us.

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Visit the Long Island Center for Tourette and Associated Disorders:
https://www.litourettecenter.org/
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info@longislandtourette.org

P.O. Box 615 Jericho, NY 11753

516-590-7551

DISCLAIMER: THE INFORMATION CONTAINED IN LI TOURETTE ASSOCIATION'S WEB SITE IS FOR INFORMATIONAL AND EDUCATIONAL PURPOSES ONLY. WHILE IT IS BASED ON PROFESSIONAL ADVICE, PUBLISHED EXPERIENCE AND EXPERT OPINION, IT DOES NOT REPRESENT A THERAPEUTIC RECOMMENDATION OR PRESCRIPTION. WE URGE YOU TO CONSULT YOUR OWN MEDICAL PROVIDER. FOR  THE FULL DISCLAIMER PLEASE PRESS HERE ©2016 BY TOURETTE ASSOCIATION OF AMERICA, LONG ISLAND CHAPTER. PROUDLY CREATED WITH WIX.COM