RESOURCES

LI TAA hopes everyone is staying safe and healthy. We thought we would share these helpful resources put together by the NY Consortium for Tourette:

 

1. MENTAL HEALTH CRISIS RESOURCES

2. SUGGESTIONS FOR SELF-CARE

3. HEALTH AND TELEHEALTH SERVICES

4. ONLINE SUPPORT & RESOURCES

5. EDUCATIONAL SUPPORT / RESOURCES

6. FREE/LOW FEE ONLINE COURSES

1. MENTAL HEALTH CRISIS RESOURCES

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2. SUGGESTIONS FOR SELF-CARE 

  • Washing your hands, wearing a mask when you are in public areas, and practicing social distancing are great practical ways to take care of your physical health during this time.   

  • Remember, it is also important to take care of your mental health!

  • Be kind to yourself, and to those around you.

  • Permit yourself and others to be human and imperfect.

  • Limit your social media.

  • Allow yourself a fixed amount of time (< one hour) to worry then move on.

  • Allow your children a fixed amount of time (< two hours) to play video games, then try a new activity.

  • Stick to (or create) healthy lifestyle habits:  Daily exercise, nutritious meals, consistent bedtime and wake-up hours.

  • Create and stick to a daily routine for yourself and your family.

  • Reach out to and nurture your support networks.

  • Focus on controlling the things that you can and letting go of those things that you cannot control.  Know the difference!

  • Develop a toolkit for self-care:  fun activities, relaxing activities, stress-relieving activities etc.

  • Find time to laugh about something at least once a day.

 

3. HEALTH AND TELEHEALTH SERVICES for

youth and adults with Tic Disorders

1) The Long Island Center for Tourette

  • In-person and telehealth services including new consultations and ongoing care are being provided as appropriate through the Long Island Center for Tourette. 

  • For further information call: Ms. Florentina Lazaroaie, Patient Navigator

 

Phone:   (516) 365-0587                 Fax: (516) 365-1909

Email:      info@litourettecenter.org

https://www.litourettecenter.org

 

2) Mount Sinai Hospital

  • Therapy and Medication Management

  • Clinical Research Trials

Phone (212) 241-2135

https://www.mountsinai.org/care/behavioral-health/services/ocd-tics/tourette-coe

 

3) Weill-Cornell Medicine

  • Call 646-962-2820 for information about telehealth services

 

4) University of Rochester Medical Center

Telehealth services are being provided where appropriate throughout the URMC system. Please contact the relevant office below for information and appointments:

  • Department of Neurology - Pediatric Neurology (for children < 18 years old). 

Phone: (585) 275-2808                   (585) 275-3683

https://www.urmc.rochester.edu/neurology/our-divisions/child-neurology.aspx

  • Department of Neurology - Movement Disorders (adults)

Phone: (585) 341-7500                   (585) 341-7510

https://www.urmc.rochester.edu/neurology/our-divisions/movement-disorders-unit.aspx

  • URMC Pediatric Behavioral Health & Wellness: Child & Adolescent Outpatient Services

Phone: (585) 279-7800

https://www.urmc.rochester.edu/childrens-hospital/behavioral-health-wellness/outpatient.aspx

  • URMC Mental Health & Wellness: Adult Outpatient Services

Call: (585) 273-5050

https://www.urmc.rochester.edu/mental-health-wellness/adult-services/outpatient/general-outpatient-services.aspx

4. ONLINE SUPPORT & RESOURCES

International OCD Foundation (IOCDF)

Centers for Disease and Prevention (CDC):

 

Office of Mental Health: 

 

NAMI

 

Child Mind Institute: 

 

The Clay Center for Young Healthy Minds: 

5. EDUCATIONAL SUPPORT / RESOURCES

1) ONLINE LEARNING

 

  • The Child & Family Institute

Our team of academic tutors, coaches, and educational consultants offer customized virtual learning sessions, home schooling and homework help, and executive functioning assistance. 

For enquiries, send email to: info@childfamilyinstitute.com

 

  • Various Learning Resources:

10 Best You Tube Educational Channels for Kids:
https://www.learningliftoff.com/the-best-educational-youtu…/

 

  • Free audio books for kids:

https://www.learningliftoff.com/free-audio-books-for-kids/

 

  • Scholastic Learn at Home:

https://classroommagazines.scholastic.com/…/learnathome.htm…

 

  • 150 Ideas for Sensory Home Learning

https://inclusiveteach.com/…/20/150-sensory-learning-ideas/…

2) ADVOCACY

 

Council of Parent Attorneys and Advocates, Inc. (COPAA)

COPAA has many resources for parents of students with special education needs.​

 

Parent Training and Information Centers

PTICs serve residents through the country, to support children and youth with disabilities, families, professionals, and other organizations that support them.  Educational advocacy is a large part of the PTIC mission.  To find the PTIC for your area in NY State, navigate to this website and scroll down to find the listings for NY State:

https://www.parentcenterhub.org/find-your-center/

 

Wrightslaw

From the Wrightslaw website, “Our goal is to provide individuals with the knowledge and skills to advocate effectively for children with disabilities”

https://www.wrightslaw.com/

 

3) STATE AND FEDERAL EDUCATION DEPARTMENTS

New York State Education Department:

Guidance for P-12 Schools, including many memos and resources, including for students with special needs

http://www.nysed.gov

 

Guidance on Continuity of Learning

http://www.nysed.gov/edtech/guidance-continuity-learning

 

NY State Board of Regents is providing live-stream video for its monthly meetings and has archived the past meetings.

https://www.regents.nysed.gov/meetings

 

State Education Department 

http://www.nysed.gov

US Department of Education 

https://www.ed.gov

 

4) FUN STUFF

Virtual National Parks

https://artsandculture.withgoogle.com/en-us/

 

Story Time from Space

Astronauts read stories, from space!

www.storytimefromspace.com

 

Virtual Field Trips

Here is a an article that lists 20 virtual field trips you can take around the globe!

https://adventuresinfamilyhood.com/20-virtual-field-trips-to-take-with-your-kids.html?fbclid=IwAR3frHS5OBqTNlCUkpqqQ7Gp9NqsYiOx-B4n6kZtEXgppd9M3P5O3xze--E

“I Spy” Mystery Tour

On a nice day when the kids really need to get out of the house:  Pile the kids in the car for an “I Spy” mystery tour. As you drive, each time you come to a stop sign or a traffic light, have the kids take turns deciding which way you go – left, right or straight ahead. Once the decision is made, I Spy begins. You name an object that they are all searching for. The list is endless; a red house, a cow, a horse, pink flowers, a tree swing, etc., etc., etc. The person who finds the object you are looking for, receives a point. The person with the most points at the end of the tour receives a prize. It doesn’t have to be monetary – pick what to eat for dinner, pick the family movie to watch that evening, pick a family game to play, bedtime a half hour later than usual, etc. Use your imagination.

Museum of Modern Art (MoMA)

Offering five free, online art classes:

Sign up through www.coursera.org

 

Metropolitan Opera Free Streams of Live Performance Archives

https://www.metopera.org/user-information/nightly-met-opera-streams/

6. FREE/LOW FEE ONLINE COURSES

Coursera

FutureLearn

  • [Added: April 8] 50+ Free Certificate Courses: Includes courses from institutions such as King’s College, University of Edinburgh, and Monash University. These certificates normally cost $30 to $85 each. Requires simple sign-up.

  • [Added: April 19 – Expires: June 30] 16 Free Certificate Courses: Includes a wide variety of certificate courses from Australian universities. These certificates normally cost $30 to $85 each. Requires simple sign-up.

Penn State

  • [Added: April 18 – Expires: April 30] 55 Free Online Courses: Includes courses about wildlife, farming practices, and business. Requires simple sign-up.

Pluralsight

  • [Added: April 8 – Expires: April 30] 7,000+ Free Tech Online Courses: Includes courses in programming, machine learning, and cyber security. A subscription normally costs $29 per month. Requires simple sign-up.

Skillshare

  • [Added: April 8] 2-Month Free Trial: Includes 2,000+ online courses in tech, business, and art. A subscription normally costs $15 per month. Requires signing up with credit card or PayPal, so don’t forget to cancel in time.

Udemy

  • [Added: April 8] 700+ Free Online Courses: Includes courses in tech, leadership, and language. Requires simple sign-up.

 
 
 
 
 
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