LI TAA hopes everyone is staying safe and healthy. We thought we would share these helpful resources put together by the NY Consortium for Tourette:

 

1. MENTAL HEALTH CRISIS RESOURCES

2. SUGGESTIONS FOR SELF-CARE

3. HEALTH AND TELEHEALTH SERVICES

4. ONLINE SUPPORT & RESOURCES

5. EDUCATIONAL SUPPORT / RESOURCES

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1. MENTAL HEALTH CRISIS RESOURCES

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• Disaster Distress Hotline (800-985-5990)

• National Suicide Prevention Lifeline (800-273-TALK)

  • Suicide Prevention Lifeline - 1-800-273-8255 

  • The National Suicide Prevention Lifeline provides free and confidential emotional support to people in suicidal crisis or emotional distress 24 hours a day, 7 days a week. Call 1-800-273-8255 or visit their website to chat with a crisis counselor.  

  • Crisis Text Line - Text ‘Home’ to 741-741 

  • Crisis Text Line is free, 24/7 support for those in any type of crisis. Text 741-741 from anywhere in the US to text with a trained Crisis Counselor. 

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2. SUGGESTIONS FOR SELF-CARE 

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• Washing your hands, wearing a mask when you are in public areas, and practicing social distancing are great practical ways to take care of your physical health during this time.   

• Remember, it is also important to take care of your mental health!

• Be kind to yourself, and to those around you.

• Permit yourself and others to be human and imperfect.

• Limit your social media.

• Allow yourself a fixed amount of time (< one hour) to worry then move on.

• Allow your children a fixed amount of time (< two hours) to play video games, then try a new activity.

• Stick to (or create) healthy lifestyle habits:  Daily exercise, nutritious meals, consistent bedtime and wake-up hours.

• Create and stick to a daily routine for yourself and your family.

• Reach out to and nurture your support networks.

• Focus on controlling the things that you can and letting go of those things that you cannot control.  Know the difference!

• Develop a toolkit for self-care:  fun activities, relaxing activities, stress-relieving activities etc.

• Find time to laugh about something at least once a day.

 

3. HEALTH AND TELEHEALTH SERVICES for

youth and adults with Tic Disorders

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1) The Long Island Center for Tourette ​

• In-person and telehealth services including new consultations and ongoing care are being provided as appropriate through the Long Island Center for Tourette. 

• For further information call: Ms. Florentina Lazaroaie, Patient Navigator

 

Phone:   (516) 365-0587                 Fax: (516) 365-1909

Email:      info@litourettecenter.org

https://www.litourettecenter.org

 

2) Mount Sinai Hospital​

• Therapy and Medication Management

• Clinical Research Trials

Phone (212) 241-2135

https://www.mountsinai.org/care/behavioral-health/services/ocd-tics/tourette-coe

 

3) Weill-Cornell Medicine​

• Call 646-962-2820 for information about telehealth services

 

4) University of Rochester Medical Center​

Telehealth services are being provided where appropriate throughout the URMC system. Please contact the relevant office below for information and appointments:

• Department of Neurology - Pediatric Neurology (for children < 18 years old). 

Phone: (585) 275-2808                   (585) 275-3683

https://www.urmc.rochester.edu/neurology/our-divisions/child-neurology.aspx

• Department of Neurology - Movement Disorders (adults)

Phone: (585) 341-7500                   (585) 341-7510

https://www.urmc.rochester.edu/neurology/our-divisions/movement-disorders-unit.aspx

• URMC Pediatric Behavioral Health & Wellness: Child & Adolescent Outpatient Services

Phone: (585) 279-7800

https://www.urmc.rochester.edu/childrens-hospital/behavioral-health-wellness/outpatient.aspx

• URMC Mental Health & Wellness: Adult Outpatient Services

Call: (585) 273-5050

https://www.urmc.rochester.edu/mental-health-wellness/adult-services/outpatient/general-outpatient-services.aspx

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4. ONLINE SUPPORT & RESOURCES

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International OCD Foundation (IOCDF)

• https://iocdf.org   

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Centers for Disease and Prevention (CDC):

• https://www.cdc.gov/ncbddd/tourette/index.html

 

Office of Mental Health: 

• https://omh.ny.gov

 

NAMI

• https://www.nami.org

 

Child Mind Institute: 

• https://childmind.org

 

The Clay Center for Young Healthy Minds: 

• https://www.mghclaycenter.org

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5. EDUCATIONAL SUPPORT / RESOURCES

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1) ONLINE LEARNING​

 

• The Child & Family Institute

Our team of academic tutors, coaches, and educational consultants offer customized virtual learning sessions, home schooling and homework help, and executive functioning assistance. 

For enquiries, send email to: info@childfamilyinstitute.com

 

• Various Learning Resources:

10 Best You Tube Educational Channels for Kids:
https://www.learningliftoff.com/the-best-educational-youtu…/

 

• Free audio books for kids:

https://www.learningliftoff.com/free-audio-books-for-kids/

 

• Scholastic Learn at Home:

https://classroommagazines.scholastic.com/…/learnathome.htm…​​​

 

• 150 Ideas for Sensory Home Learning

https://inclusiveteach.com/…/20/150-sensory-learning-ideas/…​

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2) ADVOCACY​

 

Council of Parent Attorneys and Advocates, Inc. (COPAA)

COPAA has many resources for parents of students with special education needs.​

• https://www.copaa.org

 

Parent Training and Information Centers

PTICs serve residents through the country, to support children and youth with disabilities, families, professionals, and other organizations that support them.  Educational advocacy is a large part of the PTIC mission.  To find the PTIC for your area in NY State, navigate to this website and scroll down to find the listings for NY State:

https://www.parentcenterhub.org/find-your-center/

 

Wrightslaw

From the Wrightslaw website, “Our goal is to provide individuals with the knowledge and skills to advocate effectively for children with disabilities”

https://www.wrightslaw.com/

 

3) STATE AND FEDERAL EDUCATION DEPARTMENTS

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New York State Education Department:

Guidance for P-12 Schools, including many memos and resources, including for students with special needs

http://www.nysed.gov

 

Guidance on Continuity of Learning

http://www.nysed.gov/edtech/guidance-continuity-learning

 

NY State Board of Regents is providing live-stream video for its monthly meetings and has archived the past meetings.

https://www.regents.nysed.gov/meetings

 

State Education Department 

http://www.nysed.gov

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US Department of Education 

https://www.ed.gov

 

4) FUN STUFF

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Virtual National Parks

https://artsandculture.withgoogle.com/en-us/

 

Story Time from Space

Astronauts read stories, from space!

www.storytimefromspace.com

 

Virtual Field Trips

Here is a an article that lists 20 virtual field trips you can take around the globe!

https://adventuresinfamilyhood.com/20-virtual-field-trips-to-take-with-your-kids.html?fbclid=IwAR3frHS5OBqTNlCUkpqqQ7Gp9NqsYiOx-B4n6kZtEXgppd9M3P5O3xze--E

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“I Spy” Mystery Tour

On a nice day when the kids really need to get out of the house:  Pile the kids in the car for an “I Spy” mystery tour. As you drive, each time you come to a stop sign or a traffic light, have the kids take turns deciding which way you go – left, right or straight ahead. Once the decision is made, I Spy begins. You name an object that they are all searching for. The list is endless; a red house, a cow, a horse, pink flowers, a tree swing, etc., etc., etc. The person who finds the object you are looking for, receives a point. The person with the most points at the end of the tour receives a prize. It doesn’t have to be monetary – pick what to eat for dinner, pick the family movie to watch that evening, pick a family game to play, bedtime a half hour later than usual, etc. Use your imagination.

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Museum of Modern Art (MoMA)

Offering five free, online art classes:

Sign up through www.coursera.org

 

Metropolitan Opera Free Streams of Live Performance Archives

https://www.metopera.org/user-information/nightly-met-opera-streams/​

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6. FREE/LOW FEE ONLINE COURSES

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Coursera

• [Added: April 8 – Expires: May 31] 85 Free Certificate Online Courses: Includes certificate courses from universities such as Duke, Caltech, and Georgia Tech. These normally cost about $50 each. Requires simple sign-up : https://www.coursera.org/

FutureLearn

• [Added: April 8] 50+ Free Certificate Courses: Includes courses from institutions such as King’s College, University of Edinburgh, and Monash University. These certificates normally cost $30 to $85 each. Requires simple sign-up.

• [Added: April 19 – Expires: June 30] 16 Free Certificate Courses: Includes a wide variety of certificate courses from Australian universities. These certificates normally cost $30 to $85 each. Requires simple sign-up.

Penn State

• [Added: April 18 – Expires: April 30] 55 Free Online Courses: Includes courses about wildlife, farming practices, and business. Requires simple sign-up.

Pluralsight

• [Added: April 8 – Expires: April 30] 7,000+ Free Tech Online Courses: Includes courses in programming, machine learning, and cyber security. A subscription normally costs $29 per month. Requires simple sign-up.

Skillshare

• [Added: April 8] 2-Month Free Trial: Includes 2,000+ online courses in tech, business, and art. A subscription normally costs $15 per month. Requires signing up with credit card or PayPal, so don’t forget to cancel in time.

Udemy

• [Added: April 8] 700+ Free Online Courses: Includes courses in tech, leadership, and language. Requires simple sign-up.